suzefricker@mylifeaccordingtome.org Available all the time, just send me an email and I will get back to you.

Request

Hi everyone

This for me is something difficult but I am struggling to find things to do around the flat. I have been asked to create an Isolation WishList which I have now done.

If you have any spare cash and are able to help me keep going during this difficult time please feel free to order something from my wish list as I am on my own and no place to go out to get things.

Wish list

Every little helps.

Thanks

https://www.amazon.co.uk/hz/wishlist/ls/2SC1PS4VQ1UD8?ref_=wl_share

https://www.amazon.co.uk/hz/wishlist/ls/2SC1PS4VQ1UD8?ref_=wl_share

Day 22 Lockdown Part 1

Theoretically, I was only quarantined for 14 days which ended yesterday so I have not put it in however, I am still locked in the flat so it is an ongoing thing. I really hope they find a vaccine soon for this bug. I am going to go spare!

Today I made the decision that I was going to do some good. Because I am stuck inside I am able to get food parcels, however, due to my issues with food and the fact I cant pick and choose what goes into the parcels I have spare. So, I am pulling all the food that I cant eat and boxing them back up. I am hopefully going to be able to get them to the local hospital staff who may be struggling to get to the supermarket. I hate that I can’t do much but this is something that I can do and I will do.

Try and find your good things 🙂

Day 6 part 2 Personal Lockdown

So my day has become infinitely nicer. I posted that I will be stuck in my flat until this is over baring one day a week when I can do one walk and or shop and asked for things to do. Someone had a stack of DVDs and delivered me a whole box of them.

SO I have to stay inside due to risks to me but someone has made this effort to help me stay sane and it has made my day! It makes up for the crappiness of other people!!!

We need more people helping those of us stuck inside and less selfish peopl.

Open letter to Children with Disabilities

Dear child,

I know you wish you were like all the other kids in school. You wish that you were not different. You wish that the comments would stop and that you would be accepted for who you are.

I know that when you get up in the morning wishing you could stay in bed and pray that you could stay safe. I know at times you feel so low that you want to die.

I know how you feel because I was you. I was picked on and bullied my entire school life, unfortunately for me it wasn’t until I was an adult and late late teens that I found out what made me different but it hurt. The comments that kids made, the names I got called and sometimes even physical violence. I just wanted it to end. I didn’t know how to bring the subject up with anyone because when I did things got worse. So, I internalised it all.

But, I want you to hang in there. No matter what makes you different you are special. No matter what you deal with on a day to day in school it can get better. It is hard to see the light right now but it is there and you can be who ever you want to be. You can get a college degree and you can have a career and those bullies you dealt with in school are likely to find out the hard way what Disability is. When they have to deal with it either in themselves or in the family they love they will realise and regret the choices they made. They will remember you forever because they will regret it and you will not remember them.

The light may seem far off but don’t loose hope. Don’t let the bullies win. Because everything you are going through now is giving you more strength to go out and get what you want.

Your family love you and you are loved by people who don’t even know you.

Find your strength and fight on through the pain and through the hurt because what is waiting on the other side is acceptance, love and understanding.

Bullies can only win if you let them. So fight hard every day to prove that you are the awesome person that you are.

Prayer, love and support going out to you and all children who have a Disability x you are all loved x

From

Me

I am not a campaigner

I am not a campaigner!

I know this statement sounds strange but the truth is I am not. I do not believe the world owes me something because I am autistic, dyslexic, with depression and spinal problems. I know the world does not work in a way where those in need get what they need. However, some people think that because I blog that I am a campaigner.

The truth behind what I do however, is not so much campaigning but more PR.

The disabled community has two things against them.

The first thing is that when someone with disabilities wants to work it is hard to find someone who will hire them. Obviously work places can not discriminate on disability grounds but we all know that if two candidates with the same qualifications and experience go for a job, it is more likely that the one without disabilities will get the job.

Then if someone with a disability gets a job they lose the support that they need to survive from the government. There are benefits that I could be on with advice given to me that if I stopped working I could get them. But unless I am willing to give up work I am not allowed them. How fair is this? Your telling someone who wants to work who would be entitled to the benefit that they have to loose the purpose in their life to get the help they need.

The other thing we have against us is our own community. There are people out there juts like in all communities who will say “fuck it I am disabled I don’t have to ever work again”. Because of this attitude when they are made to work they leave such a bad taste in their employers mouths that the next person who has that disability will get “oh no not another one”.

So what can we do?

I choose to role model myself in to how I would like people to view me both personally and professionally. I tell my team what sets me off, what of me can be changed and what can’t and I have open and honest dialogue with people.

I tell everyone that if I do something to upset you then I need them to explain it to me not just say “oh she is autistic” or “she has depression”. This works for no one.

I am as open and honest as I know how to be so that when the next person has my job, if they have depression, autism, physical disabilities, dyslexia the word my team say is not going to be “oh not another one” but in fact “Yes we have another one”.

Only we can change how people view us. Only we can show them that we are as good as those without disability. We don’t need campaigners, we need people willing to go out and show the world, disability does not mean we are useless.

So my challenge to all those with disabilities. Go out, find a way to show the world the amazing things that you can do. Show the world your amazing gifts that your disability gives you. We all have something. Don’t hide it but show the world the amazingness that is you.

New South Wales Rural Fire Service

To the world.

I have seen the issues in Australia and I am saddened by all of it. It is heartbreaking to see all these fires and what the first responders must be going through whether they are fighting the fires, evacuating people from their homes, dealing with the wounded or helping the survivors.

We take our first responders for granted. We know they are there when we need them and say things like “it’s their job” or “no one helps me and I do my job all the time”. But the thing is there is a difference between office work and fighting devastating fires and we need to acknowledge that. This is why I am starting a Go Fund Me page where the proceeds will go to the New South Wales Rural Fire Service. It can hopefully help sure up the services they have, help them get the things they need to replenish their stocks and maybe provide support for their firefighters who are struggling to cope with the devastation they are seeing every day.

The brush fires are still going on and the work these people are doing is stopping them from spreading further. We need to support our uniformed services and this one especially because the firefighters are volunteers. They have their own work to do but volunteer to be firefighters on top of it.

Please help me raise the money to give them. Share, retweet, or whatever you can even if you donate 50p that is better then nothing.

Let’s show these people that we care and say Thank You For Your Service. I know there are many people out there who want to help so please let’s do this for them. I am just one disabled person wanting to help those who help their community I hope everyone else will be willing to help our brothers and sisters in Australia

Here is the link

Support the NSW Fire Service

Thanks

 

I’ll be there

When you are weak, I am there;
When you want to cry, I am there with a box of tissues;
When you can’t stand, I am there to hold you up
When you need help, I am there for you;
I will be there when you need me;
You never need to ask me for help;
You are a light in the dark;
You are strong of heart;
I will always be there for you to keep you shining;
I will be there to stop your heart from breaking;

You are there for me, so I am there for you;
Just remember, you never need to ask;