suzefricker@mylifeaccordingtome.org Available all the time, just send me an email and I will get back to you.

I feel empowered

Today I have felt empowered. My mum brought a new hover. She paid £500 for it and I used it for the first time today. It is the first time in tears that I have been able to hover anything. The old hoover we had meant that I have to stop every 2 minutes, sit down, and rest for 10. This one I was able to hover my entire room in one go and not need a break… #Invincible

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Tough Week

I have had a tough week this week. Started off by not sleeping well on a Monday night and that had a knock-on effect for the whole week.

However, hard week aside I am still working on keeping positive and ongoing by making sure that I do things to help me stay active and keep on gaining more and more independent. It is important for me to gain my independence as I will not always be with my parents in their house and I need to be able to take care of myself.

Hope everyone is doing well.

You never know….

You never know how run down you have gotten until you actually stop and take some time for yourself. This is something that I have learnt the hard way. I was soo low before I went on holiday. Even with some of the people who I was penpalling with all I could write about was my up coming trip. This is not a good sign for anyone. When you are that run down you have pushed your body to beyond the limits you should have… It doesn’t help with your mental health or your physical health.

You must always remember that you are important and no matter how much good you do for others, you will never be able to continue if you run out of energy or steam.

For people with disabilities, we all know that we have the added pressures of managing our disabilities as well as everything else that we do and so it is important to know what your limits are. If you want to try and push beyond the limits to do it in a way that you are not going to hurt yourself.

I emplore everyone to make sure that they make time for themselves as often as they can. You do not need to be left in a position where you are unable to continue. Look after yourself and then you will be able to look after others x

Skyscraper

Yesterday I watched a Dwayne Johnson (the Rock) movie called Skyscraper. It was such an awesome movie because he played an amputee who has made a life for himself after his injury and then has to fight to save his family during an inferno. Obviously, those of us old enough to remember the Towering Inferno would consider it similar to that movie.

Now the reason why I found this amazing is how well he did at playing a person with a disability. It really shows that you can do anything despite your disability. I am not saying you can scale the side of a burning building but, what I am saying is that you can use your disability as a strength. This movie also had an inspirational background as an AMAZING Paralympian helped The Rock learn what it was like to be an amputee.

 Even if you do not like the idea of taking inspiration from a movie, you can take the message which is that we are all the same, just some people may struggle more than others.  Definitely, a worthwhile movie to watch.

Men so cruel

I have seriously decided men are really cruel.

I was trying to date again and when people found out that I was disabled one guy walked out of the date and the other one said: “I could get past your looks, but disabled too, damaged goods”. It is seriously mean and cruel for people to say things like this.

Honestly, I hated it. What is wrong with me? I have a kind heart and work very hard and yet people are soo mean to me. Why? Why do you have to get your rocks off hurting me 😦

AHHHHHHHHHHHH

Disability Confident: Dont be afraid to complain

This sounds like a bizarre post to put up but there is a reason for it. I went away on holiday which in itself was great. Unfortunately, the airline and the airports let me down in a big way both getting out to Italy and coming back. I honestly never felt more isolated in my life and I was traveling with a group of people.

The thing is, I decided that I would not let that define the holiday and I decided that I wanted to make sure that the people involved are actually held to account. As such I have made complaints to the airline and the airports.

The lady I spoke to today reminded me that, most people who have a bad experience will choose only to complain to the people that they know. They will accept the negative experience as something they should not question. When you have a disability it can also feel embarrassing. The question I should put to you at this point is, how can anything get better if the person or company who has done you harm, do not know that something has happened.

So, I encourage everyone with a disability, if you experience service in any form that has made you feel isolated, out of place or discriminated against then please raise a complaint and make sure that your voice is heard.

Life with multiple disabilities

Living life with a disability is hard. When you live a life with multiple ones can at times, be unbearable. I have 4 disabilities, Autism, Dyslexia, Depression and Spinal problems. It is something that at times can regularly come into conflict with each other. When I have a really bad day with my back I stay indoors and do what I can to ease the pain. The problem comes when the bad day lasts longer than one day and I have to stay indoors for longer periods of time. I start feeling low, my mood goes and my self-care goes out the window. This then causes my depression to go out the window.

With my autism, when I have a meltdown it can have a negative impact on my physical wellbeing and then the above happens again and again. It can be quite maddening. I am trying very hard to live my life but it also seems like there is no support for people in my situation 😦 But, we can survive. We can move on. We can keep the wheels turning but it means that we must keep fighting. Life is not simple however we can survive it.