suzefricker@mylifeaccordingtome.org Available all the time, just send me an email and I will get back to you.

Spoon Theory, Social Energy and Music

So, its sounds like a crazy title of a blog on disability however today I wanted to talk about these thing.

Lets start with Spoon Theory. This is a theory that people with disabilities have x amount of spoons for each day and they have to apportion the spoons so that they can make sure that they have enough to get through the day. Every time that you do something starting with getting up in the morning you loose a spoon. The idea is to not be in negative numbers (or borrow against the next day).

Social energy is relating to neurodiverse conditions which states that a Neurotypical person has one size tank and neurodiverse people have a smaller tank. Like Spoon Theory your tank empties during the day however, unlike spoon theory you can do things to refill your tank. The idea is that you need to know where your tank is and know when you need to go out. Because a neurodiverse persons tank is smaller it empties a lot quicker and when you get to around 30% your in the danger zone of meltdowns or over-stimulation. So you have to manage your tank well and take regular breaks so that you never get to that 30% mark or below.

Now, you may be wondering where music comes into this. Well, for me, Listening to music is one of the ways I refill my tank. It doesn’t help with the spoons but it helps with the tank. You see most people with disabilities have more that one condition. A lot of Autistic people I have met also have another medical condition which also relies on the spoon theory as well. it is easy to say that you follow one or the other theory but the truth is that it does not always work.

This, I have learned the hard way. I have tried living with one theory and realised I have struggled and not understood why until I found the other one. There is also nothing wrong with following both theories either. You can be low on spoons and have to plan the rest of your day carefully however, you are able to say you have a 1/2 full tank. This is what I choose to do on a regular basis and so far it has worked.

I am not saying that it works for everyone but here are some helpful things for you to remember;

  • If you are following spoon theory make sure that you know how many spoons you start off with for the day. Some people could start off with more then others depending on their condition and how it affects them.
  • If you follow the social energy theory then you have to keep a regular eye on your mood and when you feel the most hyperactive.
  • If you follow the social energy theory, know what will help you refil your tank. For me, I get to the 30% mark and I stick my headphones in and start listening to music. He helps bring me back to an even keel and I am a lot better then I was before I put them in.
  • But most importantly, know yourself. Know which is best for you. If you dont need to use spoon theory dont as it can cause you stress and vice versa with the social energy tank.

What I have found with this is that I am able to do a lot more a a proud disabled person by following these theories and you can do so as well. Just find what works for you.

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Honesty

So, I am waiting for my pills to kick in and I am honestly sitting here thinking about why I blog.

When I was diagnosed with my Autism it was like a Eureka moment for me. I had always wondered why I had struggled so much and realized that I needed a way to let out some of the stress I was going through on the day to day with all my disabilities. It really isn’t fun to live like this. Don’t get me wrong I know that I have achieved a lot whilst still having disabilities however it is definitely not fun.

So, I decided that I would blog about what life is like. The highs, the lows and everything in between. I know people do not want to hear about this but by blogging I am able to get the stresses of every day out and it really helps me. I am learning the way to deal with everything and live my life proudly as a disabled person.

A Letter from Andrea Bocelli

One of the people I wrote to in the public eye was Andrea Bocelli. He is a blind singer who has been blind from the age of 12. This is something that I find unique because he had sight and then lost it. Whilst still being blind he has earned a law degree and has been performing.

 

I received today a beautiful letter from him which really says it all.

 

“society tries to instill the doubt that we should all look the same, think similarly, learn in the same way and offer a similar kind of result, otherwise we’re out of the schemes, out of the competition”

 

Many people with disabilities can feel this all too much. When we have something that makes us different we wonder why we can’t be normal like everyone else. However, Andrea went onto say:

 

“I’ve learnt with years that the only competition worth winning was the one with myself, overcoming my limits, outdoing my best every time; when I was young, having people trying to tell me what I won’t be able to do was the perfect trigger to make me want to do more and more.”

 

This has been how I have taken on my difficulties and yet there are those who find it so difficult to look at it that way. Take this amazing musician and look at what he has accomplished. He has found what he loves and does everything that he can to make sure he can do it. When someone says, you can’t do it he does it anyway with fuel to push himself on.

 

Lastly he said “Don’t let the “disability” or any other kind of label define you, you’re not your diagnosis, even if that is part of you; there is always a way to reach your goals, to do what you want to do, even if that comes in your own way and in your own time, which, like it happens to everybody, is most likely to be different from anyone else’s”.

 

These are powerful words and I encourage everyone who has a disability to see life for what it is. A chance to show the world the best parts of yourself. Whether you have lost your sight, have autism, or even are dyslexic you can achieve what you want to. Your label doesn’t change who you are. It may put up some barriers in your way but you can over come them and do what it is that you would like to do.

 

 

Thank You Campaign & Disability Awareness

I have now set up two separate blogs for my two personal campaigns. Once I start getting more money from this blog I can look at upgrading the blog accounts so that they can hopefully make some money on their own.

I know it is a big task maintaining 3 blogs but you know what, I am up for the challenge. I hope you all follow my other two blogs which you can get the links off of my various pages.