suzefricker@mylifeaccordingtome.org Available all the time, just send me an email and I will get back to you.

I am not a campaigner

I am not a campaigner!

I know this statement sounds strange but the truth is I am not. I do not believe the world owes me something because I am autistic, dyslexic, with depression and spinal problems. I know the world does not work in a way where those in need get what they need. However, some people think that because I blog that I am a campaigner.

The truth behind what I do however, is not so much campaigning but more PR.

The disabled community has two things against them.

The first thing is that when someone with disabilities wants to work it is hard to find someone who will hire them. Obviously work places can not discriminate on disability grounds but we all know that if two candidates with the same qualifications and experience go for a job, it is more likely that the one without disabilities will get the job.

Then if someone with a disability gets a job they lose the support that they need to survive from the government. There are benefits that I could be on with advice given to me that if I stopped working I could get them. But unless I am willing to give up work I am not allowed them. How fair is this? Your telling someone who wants to work who would be entitled to the benefit that they have to loose the purpose in their life to get the help they need.

The other thing we have against us is our own community. There are people out there juts like in all communities who will say “fuck it I am disabled I don’t have to ever work again”. Because of this attitude when they are made to work they leave such a bad taste in their employers mouths that the next person who has that disability will get “oh no not another one”.

So what can we do?

I choose to role model myself in to how I would like people to view me both personally and professionally. I tell my team what sets me off, what of me can be changed and what can’t and I have open and honest dialogue with people.

I tell everyone that if I do something to upset you then I need them to explain it to me not just say “oh she is autistic” or “she has depression”. This works for no one.

I am as open and honest as I know how to be so that when the next person has my job, if they have depression, autism, physical disabilities, dyslexia the word my team say is not going to be “oh not another one” but in fact “Yes we have another one”.

Only we can change how people view us. Only we can show them that we are as good as those without disability. We don’t need campaigners, we need people willing to go out and show the world, disability does not mean we are useless.

So my challenge to all those with disabilities. Go out, find a way to show the world the amazing things that you can do. Show the world your amazing gifts that your disability gives you. We all have something. Don’t hide it but show the world the amazingness that is you.

THIS IS ME

I re-watched The Greatest Showman again tonight and again, like most people around the world I found an affinity with the movie and the songs. So, tonight I want to share my promise to myself I made after watching this inspirational movie again.

Every time I have had a new diagnosis I have always felt like I was defective. Why do I have depression? Why am I dyslexic? Why did my spine have to get crooked? But the opposit is true for my autism diagnosis. Before diagnosis I felt like I was defective. I did not understand why I was so different to everyone else especially when it came to reacting to things, or the trouble I got myself in during my WILD CHILD days.

I could not understand who I was but when I was diagnosed things came into perspective for me. It was like a weight was lifted off of my shoulders and I could say to the world THIS IS ME. However this has not been without trials and tribulations in itself.

I have faced hatred and ignorance because I come from a generation where girls were not autistic and this has come through from social media and people I have known for years and years (pre diagnosis). Because of the diagnosis I felt freedom and through these mean and horrid people I felt that I was being forced back into a box that stifled me for years.

When I watched the Greatest Showman and the song This is Me came on i honestly felt like I was going to cry especially with these lyrics;

But I won’t let them break me down to dust
I know that there’s a place for us
For we are glorious

When the sharpest words wanna cut me down
I’m gonna send a flood, gonna drown them out
I am brave, I am bruised
I am who I’m meant to be, this is me
Look out ’cause here I come
And I’m marching on to the beat I drum
I’m not scared to be seen
I make no apologies, this is me

So the promise I am making to myself is simply this. When those people who hate on me or show their ignorance because they think they know who I am and what I really feel like and go through each day try and put me back in that box. I will not let them. THIS IS ME

I am an Autistic,Dyslexic, who also has Depression and Spinal Problems.I risk meltdowns in public places when they are busy. I get over stimulated and go a bit Cray Cray until I do something to calm me. I have days when I don’t want to get out of bed, or days when I physically cant without crying. My spelling always needs to be spell checked and I take things very literally at times. But ladies and gents guess what? THIS IS ME and if you don’t like it you know where the door is!

I urge everyone who is different to read this and take it on board. You are you, if you hide that from the world you are depriving people of an amazing gift of you. March to your own drum and do not apologize for it. You are who you are and anyone who wants to stifle that does not deserve your company.