suzefricker@mylifeaccordingtome.org Available all the time, just send me an email and I will get back to you.

Inspiration

So I have had a string of people telling me that I am an inspiration and to be honest I do not understand why.

For me, I am just living my life. I have learnt ways to cope. If I have a meltdown due to my autism I work from home till I have fully recovered. If I have problems with my back I work from home till I no longer need to. If I feel low I try and reach out to people for support.

The truth is that every day for me I do not know what I could be doing because of all of my disabilities. Apparently though because I want to work this makes me inspirational. Because I, with all my disabilities still go out of my way to support others, it makes my inspiration. I do not understand this. For me, I am just living my life knowing what I can and can not do and I make the most of a bad situation. I still try and do things that everyone else can do but I do it in a controlled manner. Because of this, I have to plan well in advance what I am going to do. It doesn’t make me inspirational. It just me living my life.

I don’t understand how me living my life makes me an inspiration? Can someone explain this to me?

Advertisements

Perceived Threat

So, because I am due to move out again on my own for the first time properly on June 29th I am starting to get my anxiety levels spiking again. I know what happened when I tried before and it was basically a disaster. This time I will be truly out on my own and so my anxiety is starting to fly high again.

But what helps me keep things in check is remembering one simple thing. What I am worried about might happen but it might not. It is a perceived threat and not an actual threat. When people are trying to deal with anxiety the line between the two can get distorted so I have to keep reminding myself that something is a perceived threat.

So far I have not made it to a full autistic meltdown but other than that I am surviving.

The Blackhole is closing

I feel it closing,

The familiar feel,

The desperation and emptiness,

Why is it back?

I do what I can to keep it away so why is it back?

What more can I do to keep it at bay?

How can I stop getting this lonely sinking feeling from engulfing me whole?

The emptiness is coming again. This time its stronger and I don’t know what caused it

I look out of the window and there it is, the black hole is beckoning me, its invisible forces pulling me closer and closer

It would be so easy for me to just let it bring me in but I know what the other side of that is,

The loneliness, the lack of work, I have fought to keep myself on the right side of that black hole but honestly, I always know,

One false step, one false move, can send me hurtling back to it and put me back in its orbit,

I can’t keep fighting without any support yet no one wants to help me.

How can it be that someone in need can’t be helped?

Not one person out there can see this black hole, I know it is there

It is closing in…

 

 

Feeling very low

I am feeling very low today.

I have been soo stressed and sleepy in these last couple of weeks I got myself into a huge problem. I got seriously low and stuck in an old habbit of gaming. When you get obsessed with something you forget what is important because it is making you feel good again. However, now I am in a worse situation because I had lots of unexpected bills and now I have no money to move out.

I feel low and alone. No one is out there to help.

 

Depression – Helpful advice

Having dealt with my depression since 2007 I can tell you one thing that you should do to help keep yourself on track is to have something to look forward to. The reason why this is important is that we need something to keep your mind to good things. For me, I am able to say this 3 weeks until I have the opportunity to go and watch Giovanni Penice perform and I will get to meet him too. This has got me so happy and honestly, I am going to be able to go with a good friend. It is not something that I am able to do very often so this is going to be so great. When I have a tough week at work I keep thinking this is something that will be great and I will always be able to keep things happy.

Depression is something that you can’t fight alone but having ways to cope and try and keep the serotonin pumping is to find something that you love and go for it.

Getting the conversation started

So this week has been National Inclusion Week and one of the main things that I have learned from this week is that we need to start empowering people to talk about their disabilities, their differences as well as things that make them unique. More needs to be done to support those both inside and outside the workplace who have a story to tell but are too scared that they will be judged.

When I was first diagnosed as Autistic I wondered how on earth I would describe it to people at work. For me it made me understand some of my behaviors from my childhood however as an adult I wondered how people would take it. Luckily I had a wonderful line manager who listened and helped me out with my understand what I was going through.

Through telling my line manager I was able to identify some of the things like my issues with volume control in my voice. Every time I am anxious I was able to speak to my line manager.  Through her support, when I joined a new team, I felt confident telling them I was diagnosed as Autistic. The main thing I tell them is that if you notice something to please tell me. If I am told constructively I am able to take it however if someone has a go at me when I struggle.

With the autism, I have come to understand some of my strange behaviors. An example is that I have gotten hooked on “A Discovery of Witches” to the point where I have watched the first 3 episodes again and again and am desperate for next week to come so I can watch all 4 episodes. Before people would tell me I am strange and odd for it but I have come to understand that there are things that I love, for instance, mystical folklore, crime, and cartoons. This is just something which is my specialty areas. Because of the Autism, I tend to fixate on them which is good to know. This is helping me learn more about me and helping me to grow. I am still working out how it all works with me and I am trying very hard to grow into a more confident me but honestly, it is a challenge.

As a dyslexic, I always knew I was struggling with school. I was often told that there was no problem with me, it was just that I was not applying myself. It knocked my confidence in everything and I honestly did not even believe I would get A-levels. It took one school to really take an interest which helps. One teacher I had in particular who helped me out was Mr. Phillips. He would go through my bad homework and give me the chance to redo them. He would not change my grade but it helped me get the work up to standard. Because of him, during my A-levels, I was able to get a B in sociology. This was a very big accomplishment for me as it is a pure essay writing qualification.  Mr. Phillips helped me out so much. I honestly wish I knew where he was now so that I could thank him.

Depression is a hard one for me especially as I live with it every day. It is hard to put into words but there are just days that I do not even want to get out of bed. I want to hide under my duvet and let the world pass me by. The problem is is that I know how bad I used to get when I was first diagnosed. I took a penknife to my hand. I do not ever want to get to that state again. I try and be open about it, however, it can be hard as you wonder how people will react when you do. I know that there are people out there who will treat you like glass and they will amend the way they interact with you which is not very good. For me when people are around me being themselves it is when I almost feel alright.

Now honestly, being 32 with spinal problems is a terrible thing. It honestly makes me think I did something bad in a past life but honestly, I am hoping that I will be able to get myself to a stage when I feel confident about it. I just hope that it would do a lot better sooner rather than later so that when I am older I won’t have extra problems.

Yet, with all I have to deal with, I do my best to get the most out of every day.  I try and live my life in a way that when I look back at it I can be proud of everything that I have done. There is still so much that I want to do with my life and hope, of all hope, that I will get it done.