suzefricker@mylifeaccordingtome.org Available all the time, just send me an email and I will get back to you.

Failed June Challenge

Hi,

So clearly I failed my June Challenge however I was struggling last week and needed to be alone for a while.

I am now going to be so busy this month now its unreal.

Maybe next month will be better and easier?

Me

Advertisements

On this day

On this day June 1st the following things happened;

  1. 1967 The Beatles released Sgt Peppers Lonely Hearts Club Band Album
  2. 1968 Helen Keller died
  3. 1831 Sir James Clark Ross find the magnetic North Pole
  4. 1930 Edward Woodward is born
  5. 1880 The first public telephone
  6. 1934 Pat Boone was born
  7. 1910 Captain Robert Falcon Scott sails from London on the Terra Nova to the south pole
  8. 1937 Morgan Freeman is born
  9. 1985 Police face off with hippies at Stonehenge
  10. 1926 Marilyn Monroe is born
  11. 2002 The Queen celebrates her Golden Jubilee
  12. 2004 Nelson Mandela announces his retirement

Spoon Theory, Social Energy and Music

So, its sounds like a crazy title of a blog on disability however today I wanted to talk about these thing.

Lets start with Spoon Theory. This is a theory that people with disabilities have x amount of spoons for each day and they have to apportion the spoons so that they can make sure that they have enough to get through the day. Every time that you do something starting with getting up in the morning you loose a spoon. The idea is to not be in negative numbers (or borrow against the next day).

Social energy is relating to neurodiverse conditions which states that a Neurotypical person has one size tank and neurodiverse people have a smaller tank. Like Spoon Theory your tank empties during the day however, unlike spoon theory you can do things to refill your tank. The idea is that you need to know where your tank is and know when you need to go out. Because a neurodiverse persons tank is smaller it empties a lot quicker and when you get to around 30% your in the danger zone of meltdowns or over-stimulation. So you have to manage your tank well and take regular breaks so that you never get to that 30% mark or below.

Now, you may be wondering where music comes into this. Well, for me, Listening to music is one of the ways I refill my tank. It doesn’t help with the spoons but it helps with the tank. You see most people with disabilities have more that one condition. A lot of Autistic people I have met also have another medical condition which also relies on the spoon theory as well. it is easy to say that you follow one or the other theory but the truth is that it does not always work.

This, I have learned the hard way. I have tried living with one theory and realised I have struggled and not understood why until I found the other one. There is also nothing wrong with following both theories either. You can be low on spoons and have to plan the rest of your day carefully however, you are able to say you have a 1/2 full tank. This is what I choose to do on a regular basis and so far it has worked.

I am not saying that it works for everyone but here are some helpful things for you to remember;

  • If you are following spoon theory make sure that you know how many spoons you start off with for the day. Some people could start off with more then others depending on their condition and how it affects them.
  • If you follow the social energy theory then you have to keep a regular eye on your mood and when you feel the most hyperactive.
  • If you follow the social energy theory, know what will help you refil your tank. For me, I get to the 30% mark and I stick my headphones in and start listening to music. He helps bring me back to an even keel and I am a lot better then I was before I put them in.
  • But most importantly, know yourself. Know which is best for you. If you dont need to use spoon theory dont as it can cause you stress and vice versa with the social energy tank.

What I have found with this is that I am able to do a lot more a a proud disabled person by following these theories and you can do so as well. Just find what works for you.

Honesty

So, I am waiting for my pills to kick in and I am honestly sitting here thinking about why I blog.

When I was diagnosed with my Autism it was like a Eureka moment for me. I had always wondered why I had struggled so much and realized that I needed a way to let out some of the stress I was going through on the day to day with all my disabilities. It really isn’t fun to live like this. Don’t get me wrong I know that I have achieved a lot whilst still having disabilities however it is definitely not fun.

So, I decided that I would blog about what life is like. The highs, the lows and everything in between. I know people do not want to hear about this but by blogging I am able to get the stresses of every day out and it really helps me. I am learning the way to deal with everything and live my life proudly as a disabled person.