suzefricker@mylifeaccordingtome.org Available all the time, just send me an email and I will get back to you.

Tough Week

I have had a tough week this week. Started off by not sleeping well on a Monday night and that had a knock-on effect for the whole week.

However, hard week aside I am still working on keeping positive and ongoing by making sure that I do things to help me stay active and keep on gaining more and more independent. It is important for me to gain my independence as I will not always be with my parents in their house and I need to be able to take care of myself.

Hope everyone is doing well.

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You never know….

You never know how run down you have gotten until you actually stop and take some time for yourself. This is something that I have learnt the hard way. I was soo low before I went on holiday. Even with some of the people who I was penpalling with all I could write about was my up coming trip. This is not a good sign for anyone. When you are that run down you have pushed your body to beyond the limits you should have… It doesn’t help with your mental health or your physical health.

You must always remember that you are important and no matter how much good you do for others, you will never be able to continue if you run out of energy or steam.

For people with disabilities, we all know that we have the added pressures of managing our disabilities as well as everything else that we do and so it is important to know what your limits are. If you want to try and push beyond the limits to do it in a way that you are not going to hurt yourself.

I emplore everyone to make sure that they make time for themselves as often as they can. You do not need to be left in a position where you are unable to continue. Look after yourself and then you will be able to look after others x

Skyscraper

Yesterday I watched a Dwayne Johnson (the Rock) movie called Skyscraper. It was such an awesome movie because he played an amputee who has made a life for himself after his injury and then has to fight to save his family during an inferno. Obviously, those of us old enough to remember the Towering Inferno would consider it similar to that movie.

Now the reason why I found this amazing is how well he did at playing a person with a disability. It really shows that you can do anything despite your disability. I am not saying you can scale the side of a burning building but, what I am saying is that you can use your disability as a strength. This movie also had an inspirational background as an AMAZING Paralympian helped The Rock learn what it was like to be an amputee.

 Even if you do not like the idea of taking inspiration from a movie, you can take the message which is that we are all the same, just some people may struggle more than others.  Definitely, a worthwhile movie to watch.

I feel honored

When I came back from my much needed holiday to Italy I have come across two things that have made me feel honored.

Before I went away, I did a blog for work about Autism and faith. Essentially it was about how I work around the things that I want to do for my faith whilst also knowing some of my limitations within the autistic side of me.

What I have come back to from work is that some people have contacted me to talk about how they can better understand autism and how they can help people. This is a real honor for me. I am by no means an expert on Autism because I am still learning what Autism means for me, however, if I can help in a small way to make someone’s life a bit easier and to also help encourage more understanding of what Autism actually is then I am very glad.

Men so cruel

I have seriously decided men are really cruel.

I was trying to date again and when people found out that I was disabled one guy walked out of the date and the other one said: “I could get past your looks, but disabled too, damaged goods”. It is seriously mean and cruel for people to say things like this.

Honestly, I hated it. What is wrong with me? I have a kind heart and work very hard and yet people are soo mean to me. Why? Why do you have to get your rocks off hurting me 😦

AHHHHHHHHHHHH

I have friends

I know this is something that people have issues with relationships, even more so when you are autistic.

I have struggled my entire life to understand what a real friendship is. Not just having friendships but keeping them. Since my autism diagnosis however, being able to accept my short falls, I can safely say I have friends. It is amazing for me to say this. I never really had a frame of reference so I had to discuss it with my support worker but I have friends.

This however brings on the fear of how do I make sure that I do not loose them?

I am just so happy I can say this out loud.

Golden Rule for meltdowns – Personal View

So, I should note that this will likely change from one autistic person to another. But whilst the method may change, the principle still remains the same.

Since my diagnosis in 2018, I have had to find ways to cope. The biggest thing that I have struggled with is meltdowns. How do you survive a meltdown? For me, my meltdowns come in stages.  These stages are different levels of severity.

What I have learned helps for me is music. Whilst I was on holiday, I was getting stressed and didn’t have my music with me (dopey me left my phone at the hotel). I had an overexcited day doing things that I never thought I would ever do and then was on a boat where people were speaking VERY LOUDLY and I was on the verge of a meltdown.

Any other time I always make sure I have my phone with me for the music because when it is on I am able to zone out and calm down. So how can this work for you? try finding something that ALWAYS calms you. For me its music, for you it could be screaming, or singing, or using a fidget spinner but always keep it with you. Don’t be afraid to use it and you may find that your meltdown may be staved off.

If any of you try this let me know how it goes for you.